DeNPRU-QM is a national policy research unit covering all regions of England. Our remit also spans multiple health conditions, including all forms of dementia and all neurodegenerative diseases. We are committed to generating evidence that can make England the best place in the world for people to receive care for dementia and neurodegenerative diseases, wherever…

Karen Young is a member of the Patient and Public Engagement Group at DeNPRU-QM. In this reflective piece, she writes about her journey as a care partner for her husband, Alan. Caring is a journey of unconditional love. I am Alan’s wife, best friend and primary care partner of forty-six years. We live in South…

Nicola Handley is a member of the Patient and Public Engagement Group (PPEG) at DeNPRU-QM. To mark Carers’ Week 2025, she has written about her experience of caring for her mum. Hi, my name is Nicola and I live in Wakefield in Yorkshire. I work as a lawyer, have two children, a Labrador, and I also…

Sal Browning cares for her mum who is living with Alzheimer’s disease. In this piece, she shares how her experiences as an unpaid carer led her to join the Patient and Public Engagement Group (PPEG) at DeNPRU-QM.   I joined the group because of dementia.   Dementia is not just a diagnosis – it’s a journey, one…

Emma Williams, Sue Williams and Annie Jones are DeNPRU-QM’s Public Advisor Researchers. They all have personal experience of caring for a family member with dementia and/or a neurodegenerative disease. They are employed one day a week as researchers at the University of Liverpool, a role where they actively work on projects and develop their research…

Tommy Pouncey lives with MS and is part of our Patient and Public Engagement Group (PPEG). He shares his experience of attending the dementia prevention consensus workshop hosted by DeNPRU-QM in Nottingham in October. I was nervous, I’d been talking to a mate who explained that neurologists were the nerds of a hospital, I sat…